Prader willi Syndrome: Coping With the Disease Living With Those Involved

Prader-willi Syndrome: Coping With the Disease - Living With Those Involved

Publisher: S. Karger Publishers (USA) | ISBN: 3805578466 | edition 2005 | PDF | 120 pages | 1,16 mb

Over the past years, research into the Prader-Willi syndrome (PWS) and its treatment options has progressed enormously and new insights have greatly improved the quality of life of those affected.For many years, Urs Eiholzer has been engaged in the care of children with PWS and their families. He has published a great number of seminal scientific articles and contributions and supports a comprehensive, integrated treatment approach, taking into account both the biological and the psychological aspects of the syndrome. This easily understandable book is specifically suited for non-professionals and presents the clinical picture of the syndrome, its genetic cause, state-of-the-art research results and treatment options as used in the authors out-patient clinic. The text is illustrated with graphics and complemented by an abundance of pictures. This publication addresses not only the family members of the affected children, but also those who have contact with them from the neighbo.

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